Comments for Bill Varner's Transplant Journal http://billsjournal.com It's "Survival of the Unfittest" in my race to the top of the liver transplant list. Wed, 02 May 2012 06:42:10 +0000 hourly 1 http://wordpress.com/ Comment on How to Get a Liver 101 by Murray Olsen http://billsjournal.com/how-to-get-a-liver-101/#comment-829 Wed, 02 May 2012 06:42:10 +0000 http://pscliver.wordpress.com/?page_id=122#comment-829 Good to read other people’s experiences. I’ve got HCV and inactive (for now) HCC, with a MELD score of 13. In Brisbane I need to be 15 to get on the transplant list.

]]> Comment on How to Get a Liver 101 by Janice http://billsjournal.com/how-to-get-a-liver-101/#comment-772 Sat, 24 Mar 2012 05:14:32 +0000 http://pscliver.wordpress.com/?page_id=122#comment-772 Did it take 20 months to get on the list? I was told that I have to have a Meld Sore of 15 to be on the list. I’m so glad you’re husband has you to care for him because I understand how terrible he feels all the time.

]]> Comment on My Story by Lacil Fund http://billsjournal.com/about/#comment-695 Wed, 01 Feb 2012 16:11:54 +0000 http://pscliver.wordpress.com/?page_id=39#comment-695 An inpirational story

]]> Comment on How to Get a Liver 101 by David Foox http://billsjournal.com/how-to-get-a-liver-101/#comment-550 Fri, 16 Sep 2011 20:35:27 +0000 http://pscliver.wordpress.com/?page_id=122#comment-550 I recently came across your blog while researching Organ Donation issues. I have a personal interest in the topic – a family relative with Cystic Fibrosis was lucky enough to receive a double lung transplant from an iron man athlete killed in an accident. He “accidentally” received a great set of lungs and has continued to live a full and fruitful life – all great inspiration for my cause. I have since taken it upon myself to help draw awareness to this cause and try to get as many people as possible educated on the issue.

To do this, I have roped in an army of ORGAN DONORS. please see my toys and proceeds in the passed have gone to one of several donor charities (Gift of Life Michigan, NYODN, Donate Life, etc). here is the website and I wish Steve Jobs a healthy recovery.

FOOX

http://www.foox-u.com/vinyl/organ-donors-by-foox.html

‘No one wants to die. And yet death is the destination we all share. No one has ever escaped it.’ – Steve Jobs of APPLE (liver recipient)

 

]]> Comment on How to Get a Liver 101 by Danielle http://billsjournal.com/how-to-get-a-liver-101/#comment-540 Thu, 25 Aug 2011 02:00:10 +0000 http://pscliver.wordpress.com/?page_id=122#comment-540 Hi Mr. Varner,
Thanks for sharing your story, I was combing the web for information and was led to this website. My Husband Richard got on the list August 18,2011. It took 20 months. His MELD score started at 9 and is now 28. He is extremely ill and has had several episodes of internal bleeding, spontanious bacterial peritonitis, ascites, kidney troubles, anemia, low blood pressure and a bunch of other nasty problems. I hope you get your transplant soon, are your not listed as status 1? I was reading about that on UNOS last night. I was looking for an oline support group because I am overwhelmed at this point. LLUMC released him 2 days ago and he is very ill, as a caregiver you have to be ready at all times like a fireman at the station, because it is not a matter of if but when. Thanks for providing a place to share,
Sincerely Danielle

]]> Comment on How to Get a Liver 101 by k http://billsjournal.com/how-to-get-a-liver-101/#comment-532 Mon, 01 Aug 2011 04:39:22 +0000 http://pscliver.wordpress.com/?page_id=122#comment-532 Well, good luck to you. Hope you have the $500,000 that a liver costs, not to mention the anti-rejection meds. FYI did you know the ‘list’ for livers costs your insurance company $700 a year to be on….doesn’t sound like much; but someone is making some money when you consider 3 million Americans have hep c and will be needing a liver.
Guess those corporations have to come up with something as the gasholes are about to run out of product.

]]> Comment on My Story by Holly http://billsjournal.com/about/#comment-454 Sun, 10 Apr 2011 05:02:27 +0000 http://pscliver.wordpress.com/?page_id=39#comment-454 Hi Bill, Thx for writing about your experience. My mother has PBC & due to advancing symptoms & risk level but a Meld of only 12-13 she was encouraged to find a Living donor. We are beginning the preliminary testing & are considering MCV as the transplant ctr. I am curoius to know how you & your donor are doing now. I hope you are doing so well that you don’t have time to update your web page :)

]]> Comment on My Story by Leslie http://billsjournal.com/about/#comment-427 Thu, 24 Feb 2011 03:43:53 +0000 http://pscliver.wordpress.com/?page_id=39#comment-427 Hi Bill,
I came across your blog today by accident while researching PBC. My cross to bear. You give hope and encourgement and I thank you.

Also, I couldn’t help but notice today is your one year anniversary post transplant. I hope and pray all is well with you and Happy Anniversary.

Leslie

]]> Comment on Unexpected Bump in the Road by Al Paulsen http://billsjournal.com/2010/06/11/unexpected-bump-in-the-road/#comment-381 Sat, 25 Sep 2010 22:29:41 +0000 http://billsjournal.com/?p=894#comment-381 Bill,
I haven’t been keeping up with my email and I just read your blog with a great deal of alarm that you experienced this setback. I hope you have fully recovered and are doing well now.

I’m looking forward to getting another message saying you are back to riding the motorcycle and enjoying camping tris again.

]]> Comment on Unexpected Bump in the Road by Molly http://billsjournal.com/2010/06/11/unexpected-bump-in-the-road/#comment-376 Mon, 02 Aug 2010 18:11:01 +0000 http://billsjournal.com/?p=894#comment-376 Glad you had a good trip, but more glad you-r getting better now.

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