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Jul 26 2009

It’s Official: I’m On THE LIST

On Tuesday, July 22, 2009 I was contacted by the Medical College of Virginia informing me that I’m officially on the liver transplant waiting list. About a week ago, following a meeting with the transplant surgeon, I had been told that I could expect to wait at least 3-4 more weeks before being notified about whether or not I had been listed. So I wasn’t fully braced while going through the routine course of checking voicemails to hear that I’ve joined the ranks of the 1000 other individuals and their families in Region 11 who are also waiting for the next liver to become available.

I’ve been bracing for this day since September 1, 2000, the day I was diagnosed with primary sclerosing cholangitis, and have known since then that a transplant would almost certainly be in my future. In the corners of my mind, I held out hope that my case would be somehow different and I would magically be able to avoid such a severe measure. For the first few years following my diagnosis, that seemed to be a potentially realistic outcome since my symptoms ranged from non-existent to inconsequential. However, during the past two years, and especially during the past 6 months, I’ve been on a different trajectory altogether. My symptoms and their considerable disruption to my life have reached the point where I welcome the opportunity to discard my malfunctioning liver and replace it with a newer model straight from the showroom floor (or at least gently used).

So, what happens next? Read “How to Get a Liver 101” to find out.

2 comments

  1. Laurel Columbus

    Bill, our thoughts and prayers continue to be with you, Catherine and your kids has you continue on this journey.
    Laurel & Tim

  2. Will Flynn

    Good Morning Bill,
    I love Julia’s back to school video and that backpack wow! Did you all make that?
    I just wanted to say, I’m thinking about you and hope you all have a wonderful Labor Day.
    God Bless,
    Will

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